I was officially diagnosed with retinitis pigmentosa (RP) on 30 November 2024 when seeing an eye doctor, then I wrote a post about living with RP in December.
On 12 March 2026, 15 months after my initial RP diagnosis, I went to see another eye doctor for more thorough eye examinations, after a relative who also has RP recommended the doctor. After a series of eye examinations, my new eye doctor further confirmed that I not only have RP, but have also entered the advanced stage of RP. During my initial diagnosis, my previous eye doctor did not clarify how far my RP condition has progressed.
I was not particularly surprised by the news, since RP is a condition that advances with age, although how fast the progress goes varies from individual to individual. Not to mention, I was aware that my peripheral vision has gone weaker to the extent of not being able to see things that are not directly in front of my eyes, and the vision field test performed at my new eye clinic confirmed it.
My new eye doctor was also upfront about the possibility of RP leading to blindness, and thus I may need low vision aids in the future, which I have come to expect since my initial diagnosis.
My sentiment expressed in my previous post about living with retinitis pigmentosa still stands, in that I have already accepted that I have genetic eye disorders that currently has no cure, especially after learning that eye problems run in my family.
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